I happened across this little book in the Vancouver Island Library catalogue — you can download it and read it on the electronic device of your choice. It is the account of Elizabeth Tierney’s decade-long struggle as a caregiver to her husband. The ups and downs of diagnosis, the tidbits of hope and conversation, the agonizing memories, the crazy-making trauma of it all – it’s all here captured in vivid (but brief) detail.
It also goes with unwavering courage into those mysterious end times, because Elizabeth nursed her husband at home until he eventually just died.
If you are a caregiver you will find yourself nodding and sometimes crying at the agony of this lost love. Because it is the tale of a struggle, but more than that, a love story.
One review in nursingtimes.net concluded: “Any nurse working in dementia care, or supervising health care assistants or home care workers would benefit from reading this book. But it is strong stuff, so be prepared to weep. Think of the awesome resilience of the author the next time you start to say that a complaining relative is “just feeling guilty”. It’s always much more complex. ”
You can find the e-book here: http://virl.bibliocommons.com/item/show/896852043_dignifying_dementia