It was probably a dumb move, but i have been slowly re-engaging with dementia advocacy, feeling stronger.
So i watched “Much too young” on Knowledge TV about the caring young adult children and their parents with early dementia.
Trying to tuck mom into bed while she spirals off, in another scene, mom shouts Shut up over and over, but they don’t understand she literally means it, because just a few straight simple words work best.
And thinking about how hard it was for my guy’s adult children. When you travel with the dementia person slowly down that long appalling tunnel, i think you get acclimatised to their world, sometimes their secret meanings. You see how their core is there.
But random exposure does not give you that insight, no matter how you love each other, and although you get to keep most of your regular life, you lose that great privilege of following them down to the naked core of their being and yours.
Perhaps anyway that process is for lovers?
Kids need to go live. To caregive for this awful disease with little support or training is a nightmare, no matter your age.