We had a lovely long hour in the room we visit in; we have 2 hour visits at supper and 1 day an hour quietly together. I had brought a few items for fun, one a Melissa and Doug pounding bench (age 2+) with colourful pegs that go up and down.

Well, that pounding game was barely interesting to his nibs, he was politely bored, but he liked the hammer after i took the plastic wrap off – totally rejected it before.

And then we had sanding and polishing — the pegs, my jeans, the board, for at least half an hour. I loved to see him engrossed in a project.

As our time together grew to a close, i introduced the art balls – colourful, pretty strongly attached, movable in many shapes.

He did clearly have opinions on how they should be positioned, including balancing them.

Then it was time for supper. To be honest, an hour or more of interacting with him so intensely on his level leaves me wrung out, so i was glad.

I got him up on his feet and the care aide came with the wheelchair to say let’s go to supper. But he was on his feet now. Forget the chair.

So she tried to walk him to supper, but he braced against the wall and said very clearly and loudly, “No I do not want to go.”

Behind, i collapsed laughing, thinking, that’s my guy! but quickly the care aide switched without blinking to ” let’s dance” swung his hands and seduced and sang him into the hall. I followed with the chair until at exactly the right moment, she got him sitting down.

For those who cannot imagine these daily care scenes, he needs to be in the chair to eat because he falls asleep right after supper. And he is heavy.

But i am still gobsmacked at the clear intent and diction of that “No”. He is way more aware of what is going on than it seems on casual interaction. My guy, still using his amazing brain.

I miss him so.

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One response to “Gobsmacked

  1. Susan Yates

    Ah-hah..dance me to the dinner table – what a great helper! Love, S >